BARTH SYNDROME FOUNDATION
Barth Syndrome Foundation is a volunteer organization dedicated to saving lives through education and treatment.
BARTH SYNDROME FOUNDATION
Industry:
Education Family Health Care Medical
Founded:
2000-01-01
Address:
Larchmont, New York, United States
Country:
United States
Website Url:
http://www.barthsyndrome.org
Total Employee:
1+
Status:
Active
Contact:
914-303-6323
Email Addresses:
[email protected]
Technology used in webpage:
Domain Not Resolving Amazon DoubleClick.Net Google Analytics Classic Java EE Salesforce
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Current Employees Featured
Official Site Inspections
http://www.barthsyndrome.org Semrush global rank: 6.28 M Semrush visits lastest month: 1.05 K
- Host name: ec2-52-5-5-85.compute-1.amazonaws.com
- IP address: 52.5.5.85
- Location: Ashburn United States
- Latitude: 39.0481
- Longitude: -77.4728
- Metro Code: 511
- Timezone: America/New_York
- Postal: 20149
More informations about "Barth Syndrome Foundation"
Barth Syndrome Foundation of Canada - Home
Barth Syndrome Foundation of Canada - diagnosis and treatment of Barth syndrome, and its impact on the lives of patients and their families.See details»
Barth Syndrome Foundation - Facebook
Barth Syndrome is a rare, life- threatening, X-linked genetic disorder. The organization is dedicated to saving lives through education, advancing …See details»
Affiliates - Barth Syndrome Canada
Affiliates The Barth Syndrome Foundation of Canada is an affiliate of the Barth Syndrome Foundation, Inc., and we are part of an international organization that supports families and …See details»
Families and Barth Syndrome Individuals - Barth Syndrome Canada
We are not only active volunteers of this organization, we are families of someone affected by BTHS, and our experiences will be similar to yours. We also respond to inquiries from …See details»
Barth Syndrome Foundation - National Organization for Rare …
The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening genetic, multi-system …See details»
Overview : About BSF : Barth Syndrome Foundation
Email: [email protected]. Family Services. ... Employee Access, Training and Expectations-- Our organization values, ethical standards, policies and practices are …See details»
BARTH SYNDROME FOUNDATION INC - GuideStar Profile
What are the organization's key strategies for making this happen? PRIORITY 1 – Expand science and medicine program to further encourage finding treatments or a cure; PRIORITY 2 …See details»
Barth Syndrome Foundation - Health Research Alliance
We are the only world-wide volunteer organization dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome (BTHS). We started in 2000, after the first international conference held in …See details»
Barth syndrome: A life-threatening disorder caused by abnormal ...
A .gov website belongs to an official government organization in the United States. Secure .gov websites use HTTPS A lock ... All interested scientists and clinicians should refer to the Barth …See details»
Barth Syndrome Trust - Children's Heart Federation
We are part of a worldwide voluntary community helping boys and families affected by Barth syndrome and working towards a cure. We provide up to date information to families and …See details»
Meet The People We Serve : Meet Our Community - Barth syndrome
Employee Access, Training and Expectations-- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our …See details»
Barth syndrome | About the Disease | GARD - Genetic and Rare …
Please contact an organization directly if you have questions about the information or resources it provides. View GARD's criteria for including patient organizations, which can be found under …See details»
Barth syndrome - National Organization for Rare Disorders
The information provided on this page is for informational purposes only. The National Organization for Rare Disorders (NORD) does not endorse the information presented. The …See details»
What is Barth Syndrome? - Stealth BioTherapeutics Inc.
Research & Treatments No treatments specific for Barth syndrome have been approved. However, there are several active clinical trials and researchSee details»
Barth syndrome - PMC
Barth syndrome (BTHS) is an X-linked recessive disorder that is typically characterized by cardiomyopathy (CMP), skeletal myopathy, growth retardation, neutropenia, and increased …See details»
Now is the time to register for conference and sign up for your ...
Apr 15, 2024 The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening …See details»
RESEARCH & DEVELOPMENT - Barth syndrome
Employee Access, Training and Expectations-- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our …See details»
Initial Psychometric Evaluation of the Barth Syndrome Symptom ...
1 day ago Barth syndrome (BTHS) is a rare, X-linked disorder that stems from mutations in the TAFAZZIN (TAZ) gene with varying disease severity among patients. The Barth Syndrome …See details»
Resources for families affected by Barth syndrome
We are not only active volunteers and believers in the programs of this organization; we are families of someone affected by Barth syndrome. BSF is much more than a website, we are a …See details»
Press Releases - Barth syndrome
Barth Syndrome Foundation Recognizes First Annual Barth Syndrome Awareness Day. BOSTON, April 5, 2023 /PRNewswire/ -- The Barth Syndrome Foundation (BSF), the only …See details»