BATTEN DISEASE FAMILY ASSOCIATION
Batten Disease Family Association is a nonprofit organization for creating awareness and support for neurodegenerative or batten disease.
BATTEN DISEASE FAMILY ASSOCIATION
Industry:
Communities Non Profit Social
Founded:
1998-01-01
Address:
London, England, United Kingdom
Country:
United Kingdom
Website Url:
http://www.bdfa-uk.org.uk
Total Employee:
1+
Status:
Active
Contact:
+44 7876 682589
Email Addresses:
[email protected]
Technology used in webpage:
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More informations about "Batten Disease Family Association"
bdfa-uk.org.uk - Batten Disease Family Association (BDFA)
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Charity number: 1205650 Recently registered Skip to Content Charity overview What, who, how, where Governance Trustees Financial history Accounts and annual returns Governing …See details»
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Batten Disease Family Association CIO| GoSkydive
The Batten Disease Family Association CIO (BDFA) is the only patient organisation in the UK for the families affected by Batten disease, a rare and terminal neurodegenerative condition that …See details»
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In 2024 the BDFA successfully completed the transition to a Charitable Incorporated Organisation (CIO). As a CIO, the BDFA has a legal status similar to a company and it provides the …See details»
BATTEN DISEASE FAMILY ASSOCIATION - Charity 1084908
Charity number: 1084908 Charity reporting is up to date (on time) skip-to-content Charity overview What, who, how, where Governance Trustees Financial history Assets and liabilities Accounts …See details»
Our Strategy and Mission Statement - bdfa-uk.org.uk
The BDFA's mission is to enable children and adults who are effected by Batten disease to live life to the full and to provide families with the care and support they need so that they do not …See details»
Batten Disease Family Association - Crunchbase
Batten Disease Family Association is a nonprofit organization for creating awareness and support for neurodegenerative or batten disease.See details»
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Activities - how the charity spends its money A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with …See details»
About us | Batten Disease Family Association (BDFA)
We are the only registered charity providing professional support to individuals and families affected by Batten Disease in the UK. BDFA is a working name of the Batten Disease Family …See details»
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Farewell Message from the Chair of the BDFA - bdfa-uk.org.uk
3 days ago Her appointment and leadership sparked a renaissance at the BDFA, and from that moment on, the rebuild began in earnest. The BDFA Board overhauled the organisation’s …See details»