ERDHEIM-CHESTER DISEASE GLOBAL ALLIANCE
Erdheim-Chester Disease Global Alliance provides patient advocacy, caregiver, rare disease awareness, fundraising, patient and family gatherings, medical symposium, research, grants, patient support, caregiver support, and networking services.
ERDHEIM-CHESTER DISEASE GLOBAL ALLIANCE
Industry:
Advice Consulting Education Health Care Non Profit
Founded:
2008-04-01
Address:
Deridder, Louisiana, United States
Country:
United States
Website Url:
http://www.erdheim-chester.org
Total Employee:
1+
Status:
Active
Email Addresses:
[email protected]
Official Site Inspections
http://www.erdheim-chester.org Semrush global rank: 10.21 M Semrush visits lastest month: 25
- Host name: ec2-34-203-181-76.compute-1.amazonaws.com
- IP address: 34.203.181.76
- Location: Ashburn United States
- Latitude: 39.0481
- Longitude: -77.4728
- Metro Code: 511
- Timezone: America/New_York
- Postal: 20149
More informations about "Erdheim-Chester Disease Global Alliance"
Erdheim-Chester Disease Global Alliance
35 rows The ECD Global Alliance is dedicated to the awareness, support, …See details»
Erdheim-Chester Disease Global Alliance
Aug 7, 2024 The Erdheim-Chester Disease Global Alliance is a 501(c)(3) organization. Gifts are deductible to the full extent allowable under IRS regulations. Your donation helps the ECDGA …See details»
ECD (Erdheim-Chester Disease) Global Alliance - National …
The ECD Global Alliance is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. Towards this mission the organization will work with the global …See details»
Erdheim-Chester disease: consensus recommendations for …
May 28, 2020 Erdheim-Chester disease (ECD) is a rare histiocytosis that was recently recognized as a neoplastic disorder owing to the discovery of recurrent activating MAPK (RAS …See details»
ECD GLOBAL ALLIANCE INC - GuideStar Profile
The ECD Global Alliance is dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease. Towards this mission, the organization will work with the global …See details»
Erdheim Chester Disease - Symptoms, Causes, Treatment | NORD
Jun 15, 2023 Erdheim-Chester disease (ECD) is a rare multisystem disorder of adulthood. It is characterized by excessive production and accumulation of histiocytes within multiple tissues …See details»
Erdheim–Chester disease - Wikipedia
Erdheim–Chester disease (ECD) is an extremely rare disease characterized by the abnormal multiplication of a specific type of white blood cells called histiocytes, or tissue macrophages …See details»
Erdheim-Chester disease | Radiology Reference Article
Nov 3, 2024 Erdheim-Chester disease is a systemic lipogranulomatous disorder with infiltration by lipid-laden histiocytes (foamy macrophages), Touton giant cells, and a variable amount of …See details»
Erdheim-Chester Disease Global Alliance
Jul 1, 2024 Whether you or a loved one has been recently diagnosed with Erdheim-Chester Disease, you are a scientist/physician, or you are interested in the work of the ECD Global …See details»
Erdheim-Chester disease - National Organization for Rare Disorders
Erdheim-Chester disease (ECD), a non-Langerhans form of histiocytosis, is a multisystemic disease characterized by various manifestations such as skeletal involvement with bone pain, …See details»
Erdheim-Chester Disease | Leukemia and Lymphoma Society
Erdheim-Chester disease involves the excessive production of histiocytes, which are a type of white blood cell. These cells, which normally help fight infection and injury, then gather in …See details»
Erdheim-Chester Disease | Histiocytosis Association
Erdheim-Chester Disease is a rare form of non-LCH that mainly becomes apparent in middle age, mainly affecting long bones, but can occur in certain tissues. ... but was recognized as a blood …See details»
The clinical spectrum of Erdheim-Chester disease: an observational ...
Feb 9, 2017 Erdheim-Chester disease (ECD), first described by William Chester and Jakob Erdheim in 1930, 1 is a rare, group “L” (Langerhans) histiocytosis 2 characterized by the …See details»
Erdheim-Chester disease - American Society of Hematology
Apr 16, 2020 Erdheim-Chester disease (ECD) is characterized by the infiltration of tissues by foamy CD68 + CD1a − histiocytes, with 1500 known cases since 1930. Mutations activating …See details»
Erdheim-Chester disease - National Organization for Rare Disorders
Disease Overview. Erdheim-Chester disease (ECD) is a rare condition that can affect many parts of the body.[2083] It has been diagnosed in children, but it most commonly affects …See details»
Erdheim-Chester Disease Global Alliance
Thank you for considering lending your skills to the work of the organization. The ECDGA members are a community of people that come together to overcome ECD and adult …See details»
Consensus guidelines for the diagnosis and clinical management …
Jul 24, 2014 Erdheim-Chester disease (ECD) is a rare, non-Langerhans histiocytosis described by Jakob Erdheim and William Chester in 1930. 1 Although 500 to 550 cases have been …See details»
Imaging in Erdheim-Chester Disease | RadioGraphics
Aug 22, 2024 Erdheim-Chester disease (ECD) is a rare, multisystemic, inflammatory, non–Langerhans cell histiocytic neoplasm. The discovery of recurrent and somatic mutations …See details»
Diagnosis and Management of Erdheim-Chester Disease, a MAPK …
Jan 2, 2020 A detailed review of systems revealed that he also had progressive upper extremity weakness, headaches, and gait imbalance. Histopathologic review of the orbitotomy …See details»