ERDHEIM-CHESTER DISEASE GLOBAL ALLIANCE
Erdheim-Chester Disease Global Alliance provides patient advocacy, caregiver, rare disease awareness, fundraising, patient and family gatherings, medical symposium, research, grants, patient support, caregiver support, and networking services.
ERDHEIM-CHESTER DISEASE GLOBAL ALLIANCE
Industry:
Advice Consulting Education Health Care Non Profit
Founded:
2008-04-01
Address:
Deridder, Louisiana, United States
Country:
United States
Website Url:
http://www.erdheim-chester.org
Total Employee:
1+
Status:
Active
Email Addresses:
[email protected]
Official Site Inspections
http://www.erdheim-chester.org Semrush global rank: 10.21 M Semrush visits lastest month: 25
- Host name: static.45.212.161.5.clients.your-server.de
- IP address: 5.161.212.45
- Location: Germany
- Latitude: 51.2993
- Longitude: 9.491
- Timezone: Europe/Berlin
More informations about "Erdheim-Chester Disease Global Alliance"
Erdheim-Chester Disease Global Alliance
Oct 30, 2021 The ECD Global Alliance is dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease. The organization works with the global community to accomplish the following: Raise …See details»
ECD (Erdheim-Chester Disease) Global Alliance - National …
The ECD Global Alliance is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. Towards this mission the organization will work with the global …See details»
ECD Global Alliance | Histiocytosis Association
The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and …See details»
Erdheim-Chester disease - National Organization for Rare Disorders
Erdheim-Chester disease (ECD), a non-Langerhans form of histiocytosis, is a multisystemic disease characterized by various manifestations such as skeletal involvement with bone pain, …See details»
ECD Global Alliance | Leukemia and Lymphoma Society - lls.org
Advocates on behalf of Erdheim-Chester Disease patients; Stay informed. Enter your information to receive occasional news and important updates! Subscribe. ... The Leukemia & Lymphoma …See details»
Erdheim-Chester disease: consensus recommendations …
May 28, 2020 Erdheim-Chester disease (ECD) is a rare histiocytosis that was recently recognized as a neoplastic disorder owing to the discovery of recurrent activating MAPK (RAS-RAF-MEK-ERK) pathway mutations. Typical findings …See details»
Erdheim-Chester Disease Global Alliance
Oct 31, 2024 Overview Erdheim-Chester Disease (ECD) is an extremely rare blood cancer that can affect many different organs of the body.&n ... However, in 2016, the World Health Organization (WHO) categorized ECD as a type of …See details»
Erdheim-Chester Disease | Leukemia and Lymphoma …
Erdheim-Chester Disease Erdheim-Chester disease (ECD) is a rare, slowgrowing blood cancer and a type of histiocytosis. Histiocytosis is a disorder marked by the excessive production of histiocytes, a type of immune cell. ... The Leukemia & …See details»
Erdheim-Chester Disease | Histiocytosis Association
Erdheim-Chester Disease is a rare form of non-LCH that mainly becomes apparent in middle age, mainly affecting long bones, but can occur in certain tissues. ... but was recognized as a blood …See details»
Erdheim–Chester disease - Wikipedia
Erdheim–Chester disease (ECD) is an extremely rare disease classified as a non-Langerhans-cell histiocytic neoplasm. In 2016, the World Health Organization (WHO) defined ECD as a slow …See details»
Charity Navigator - Rating for ECD Global Alliance Inc.
This Charitable Organization is headquartered in DERIDDER, LA. ECD Global Alliance Inc. has earned a 3/4 Star rating on Charity Navigator. This Charitable Organization is headquartered …See details»
Erdheim Chester Disease - Symptoms, Causes, Treatment | NORD
Jun 15, 2023 Erdheim-Chester disease (ECD) is a rare multisystem disorder of adulthood. It is characterized by excessive production and accumulation of histiocytes within multiple tissues …See details»
A patient with Eradheim-Chester disease presenting with …
Mar 12, 2025 Background Erdheim-Chester disease (ECD), a rare type of non-Langerhans cell histiocytosis, was classified as a haematopoietic tumour by the World Health Organization …See details»
Erdheim-Chester Disease Global Alliance
Dec 18, 2024 (Please contact the ECDGA at [email protected] for more information) California Institution: UC San Diego Moores Cancer Center Location: 3855 Health …See details»
Diagnosis and Management of Erdheim-Chester Disease, a MAPK …
Jan 2, 2020 A detailed review of systems revealed that he also had progressive upper extremity weakness, headaches, and gait imbalance. Histopathologic review of the orbitotomy …See details»
Erdheim-Chester Disease Global Alliance
The Erdheim-Chester Disease Global Alliance (ECDGA) exists to provide awareness, support, education, and advocacy for individuals affected by this disease. Since our founding in 2009, …See details»
Prognostic factors of Erdheim–Chester disease: a nationwide …
Erdheim–Chester disease (ECD) is a rare non-Langerhans histiocytosis that was first reported by Jakob Erdheim and William Chester in 1930.1 The number of reports has drastically increased …See details»
Consensus guidelines for the diagnosis and clinical management …
Jul 24, 2014 Erdheim-Chester disease (ECD) is a rare, non-Langerhans histiocytosis described by Jakob Erdheim and William Chester in 1930. 1 Although 500 to 550 cases have been …See details»
A Group No One Applies to Join - National Organization for Rare …
Sep 14, 2016 By Elizabeth Silva Anderson, ECD Global Alliance, a NORD Member Organization. An interview with Erdheim-Chester Disease patient, Janet Bunge, in honor of …See details»
Erdheim-Chester Disease Global Alliance
Not long ago, Erdheim-Chester Disease (ECD) was a medical mystery—an enigmatic condition that confounded physicians and left patients without answers. But thanks to decades of …See details»