FSHD SOCIETY
The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD)
FSHD SOCIETY
Founded:
1991-01-01
Status:
Active
Contact:
(781) 301-6060
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Investments List
| Date | Company | Article | Money raised |
|---|---|---|---|
| 2021-05-28 | miRecule | FSHD Society investment in Venture Round - miRecule | 5.7 M USD |
More informations about "FSHD Society"
About the FSHD Society
The FSHD Society is leading the global charge to find treatments and a cure for facioscapulohumeral muscular dystrophy (FSHD) while empowering individuals and families …See details»
About Us - FSHD Society
About Us The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular …See details»
Local Chapters - FSHD Society
Find Strength in Community Our local chapters allow you to connect with others who understand FSHD, support you in your journey, and provide you with valuable resources and information …See details»
Our History - FSHD Society
What started as a small group of dedicated advocates has grown into the world’s largest research-focused FSHD patient organization. Today, the FSHD Society is a global force with …See details»
Online Communities - FSHD Society
Online Communities FSHD can feel overwhelming, but you don’t have to face it alone. Connecting with others can make a world of difference, whether you are looking for advice, information, or …See details»
Reflecting on my years with the FSHD Society
Jul 31, 2025 My path to the FSHD Society was anything but linear. With a background in science journalism and nonprofit and for-profit leadership in the Alzheimer’s and molecular oncology …See details»
Communities - FSHD Society
The World FSHD Alliance is a global network of FSHD organizations working together to advance research, raise awareness, and improve the lives of individuals with FSHD worldwide. If you’re …See details»
Our Impact - FSHD Society
The FSHD Society is the world’s largest patient advocacy and research organization focused on facioscapulohumeral muscular dystrophy (FSHD). Our work is aimed at speeding the …See details»
FSHD Society - Facebook
2 days ago FSHD Society. 6,258 likes · 526 talking about this. For more information about who we are and what we do, please visit www.fshdsociety.orgSee details»
For Researchers - FSHD Society
The FSHD Society is the world’s largest FSHD patient advocacy organization focused on research. For over 30 years, we have built strong relationships with the global FSHD research …See details»
Managing FSHD - FSHD Society
Managing FSHD Being diagnosed with FSHD can feel overwhelming and bring many challenges. Whether you are newly diagnosed or have been living with FSHD for years, managing the …See details»
Our Mission - FSHD Society
The FSHD Society is dedicated to accelerating research toward treatments and a cure while supporting individuals and families every day. This vital work is made possible through the …See details»
About FSHD Canada Foundation
The FSHD Canada Foundation was created for Canadian’s like Neil and Craig — and their families — who suffer from FSHD and want to do something about it. It’s for Canadians who …See details»
The FSHD Advocate Magazine - FSHD Society
Published three times per year, the FSHD Advocate is the voice of our community, educating and empowering us all to take control of our FSHD journey and power the path towards a cure. …See details»
World FSHD Alliance - FSHD Society
World FSHD Alliance The purpose of World FSHD Alliance is to connect and activate the FSHD community globally in order to build a worldwide community of activists, empower patients, …See details»
FSHD Society Ontario Canada Chapter - Facebook
FSHD Society Ontario Canada Chapter. 141 likes · 24 talking about this. The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular …See details»
FSHD
FSHD is also broadly characterized as a neuromuscular disease (NMD), as muscular dystrophy is a subset of NMD. Muscular dystrophies are alike in that they cause progressive skeletal …See details»
Living With FSHD - FSHD Society
The FSHD Society offers comprehensive resources for navigating life with facioscapulohumeral muscular dystrophy (FSHD). The FSHD Society is committed to supporting individuals living …See details»
Join Us - FSHD Society
Join the Society Want a deeper connection? By joining the FSHD Society, you’ll receive resources tailored to your interests, updates on key initiatives, and opportunities to get involved in …See details»
Get Involved - FSHD Society
Get involved with the FSHD Society and community – Connect with patients, families, and resources. Find local chapters, donate and raise funds, and advocate.See details»