KABUKI SYNDROME FOUNDATION

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Kabuki Foundation is a nonprofit organisation that provides grants for research projects on Kabuki Syndrome through fundraising. it builds awareness & knowledge on syndrome among people.

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KABUKI SYNDROME FOUNDATION

Social Links:

Industry:
Non Profit

Founded:
2018-01-01

Status:
Active

Email Addresses:
[email protected]

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Investments List

Date Company Article Money raised
2021-09-21 Oryzon Genomics SA Kabuki Syndrome Foundation investment in Grant - Oryzon Genomics SA 1000 K USD

More informations about "Kabuki Syndrome Foundation"

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Advocating for individuals with Kabuki syndrome by driving research that will change lives. Established in 2018, the Kabuki Syndrome Foundation is a non-profit organization dedicated …See details»

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Driving the Kabuki Syndrome Research Agenda As of January 8, 2025, the Kabuki Syndrome Foundation has committed $2.4 million to advance LEAP, our research roadmap focused on developing treatments for Kabuki syndrome. …See details»

How to Support Kabuki Syndrome Foundation - GoFundMe

The Kabuki Syndrome Foundation (KSF) is the only US based 501c3 nonprofit organization dedicated to advocating for the advancement of Kabuki syndrome research. Since its inception …See details»

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Mission The Kabuki Syndrome Foundation (KSF) is the only US based 501c3 nonprofit organization dedicated to advocating for the advancement of Kabuki syndrome research. …See details»

Kabuki Count: The Global Kabuki Syndrome Census

Jan 3, 2025 A global collection of patient advocacy groups, led by the Kabuki Syndrome Foundation, have partnered to ensure Kabuki syndrome is not left behind as scientific research advances. Rare disease research only moves …See details»

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Kabuki Syndrome Foundation has earned a 4/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in NORTHBROOK, IL.See details»

Kabuki Syndrome Foundation - Crunchbase

Kabuki Foundation is a non profit organisation that provides grants for research projects on Kabuki Syndrome.See details»

9 Potential Treatments Identified, $700,000 in New Grants - KSF …

Jan 24, 2025 The Kabuki Syndrome Foundation (KSF) is proud to share our 2024 impact report, a reflection of our collaborative efforts and a call to action for the journey ahead. Together, we …See details»

Kabuki Syndrome Foundation Awards $125,000 to …

Jun 14, 2022 The Kabuki Syndrome Foundation was established in 2017 and is a U.S.-based nonprofit organization dedicated to accelerating research efforts that show promise to treat, prevent, or cure Kabuki syndrome.See details»

Kabuki Syndrome Foundation - Facebook

Kabuki Syndrome Foundation. 1,402 likes · 27 talking about this. Let’s find treatments faster - through fundraising, knowledge-sharing, and collaborating.See details»

Kabuki Syndrome Foundation (@kabukisyndrome) - Instagram

1,072 Followers, 257 Following, 262 Posts - Kabuki Syndrome Foundation (@kabukisyndrome) on Instagram: "Driving research that shows promise to treat or cure Kabuki syndrome through …See details»

All Things Kabuki and NORD® Launch Natural History Study of …

Wasilla, Alaska, August 3, 2022 — All Things Kabuki and the National Organization for Rare Disorders, Inc. have launched a study with global reach to research Kabuki syndrome, which …See details»

Kabuki Syndrome Foundation - Nonprofit Explorer - ProPublica

Since 2013, the IRS has released data culled from millions of nonprofit tax filings. Use this database to find organizations and see details like their executive compensation, revenue and …See details»

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The Kabuki Syndrome Outcome measures and biomarkers Consortium (KSOC) is a new collaborative clinical research study created, funded, and led by the Kabuki Syndrome …See details»

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Kabuki Syndrome poster presented at the National Organization for Rare Disorders (NORD) 2022 Summit! Academic and community collaboration to accelerate Kabuki Syndrome awareness, …See details»

Kabuki syndrome | About the Disease | GARD - Genetic and Rare …

Kabuki syndrome is a rare disorder that affects multiple parts of the body. It is present from birth. Specific symptoms and severity can vary. Features often include a characteristic facial …See details»

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Jul 6, 2023 Learn about Kabuki Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources andSee details»

Kabuki Syndrome Resources For Families | KSF

Kabuki syndrome resources and tools for families & those diagnosed with Kabuki syndrome. Educational materials for Kabuki Syndrome.See details»

Kabuki syndrome: a comprehensive clinical portrait and genetic …

This report details the case of a preadolescent female patient diagnosed with Kabuki syndrome, a rare genetic disorder characterised by distinctive facial features, growth delay and cognitive …See details»

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Oct 29, 2024 Keep up-to-date with Kabuki Syndrome news. Learn about research, clinical trials, treatment pathways & Kabuki Syndrome Foundation resources.See details»

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