NATIONAL PKU ALLIANCE

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National PKU Alliance is a vital voice for the PKU community.

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NATIONAL PKU ALLIANCE

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Founded:
2008-01-01

Status:
Active


Investments List

Date Company Article Money raised
2022-03-16 Aptatek Biosciences National PKU Alliance investment in Seed Round - Aptatek Biosciences 4 M USD

More informations about "National PKU Alliance"

National PKU Alliance - National Organization for Rare …

The National PKU Alliance (NPKUA) is a vital voice for the PKU community. ... They are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and industry to …See details»

Home - The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU) was founded in 1973 as the national charity for people living with the rare […] Skip to content. Helpline: 030 3040 1090 • Celebrating 50 …See details»

Catherine Warren, executive director of National PKU Alliance

2 days ago National PKU Alliance (NPKUA) is a registered not-for-profit (501(c)(3)) organisation that was founded in 2008 after parents and grandparents formed a working group to create the …See details»

National PKU Alliance - Ask JAN

Organization: National PKU Alliance. About: The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and …See details»

National PKU Alliance | Washington D.C. DC - Facebook

National PKU Alliance. Intro PKU is a rare genetic disorder. People with PKU cannot process phenylalanine found in all protein. Page · Nonprofit organization. 1802 Vernon Street, NW …See details»

Phenylketonuria (PKU) Associations and Resources - BioMarin PKU …

An organization dedicated to rallying the inherited metabolic disorder community to continuously improve our care and accelerate scientific progress. ... National PKU Alliance (NPKUA) The …See details»

About NPKUA | NPKUA

NPKUA was founded in 2008 after parents and grandparents formed a working group in 2006 to create the beginnings of National PKU Alliance (NPKUA) to unite local and regional groups throughout the U.S. ... the only national organization …See details»

Phenylketonuria (PKU) Resources - Eunice Kennedy Shriver …

May 1, 2024 National PKU News This nonprofit organization is dedicated to providing up-to-date news and information on PKU. ... This is a network of individuals and families affected by PKU. …See details»

TruePKU Initiative Provides Global PKU Community an …

WASHINGTON, Dec. 5, 2024 /PRNewswire/ -- The National PKU Alliance (NPKUA), in collaboration with a coalition of PKU-related patient advocacy organizations, announces the …See details»

National PKU Alliance

National PKU Alliance. Start here. Register an account. Start your application (save it in-progress). Submit your application to be reviewed. For your reference the 2025-2026 Request …See details»

Charity Navigator - Rating for National Pku Alliance Inc.

National Pku Alliance Inc. has earned a 4/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in WASHINGTON, DC. ... Simply enter the organization's name …See details»

MY PKU Binder - PKU Organization of IL

The National PKU Alliance hopes My PKU Binder will help you understand more about PKU, what to expect at different stages in life, and where to turn for support and help. The NPKUA would …See details»

NPKUA Urges Adult Patients to Join PKU Registry, Assist Research

Nov 18, 2020 The National PKU Alliance (NPKUA) is encouraging people with phenylketonuria (PKU) to join the PKU Registry, which is working to help scientists better understand and …See details»

About PKU | NPKUA

PKU medical foods, including formulas and specialty modified low-protein foods, support individuals with PKU to maintain a diet low in Phe. You should speak to your clinician about …See details»

Research - NPKUA

Since August 2015 I am directing a large PKU clinic. I have contributed to the PKU registry. I serve on the Scientific Advisory Board of the National PKU Alliance, which is the family …See details»

Affiliates - NPKUA

The NPKUA Affiliate Council hopes to inspire regional PKU organizations to lift one another up as we all work closely to improve the lives of people with PKU while pursuing a cure. If you are …See details»

TruePKU Initiative | PKU Community Opportunity Shares | NPKUA

Dec 2, 2024 People affected by phenylketonuria (PKU) unite to describe challenges of managing PKU and aspirations for the future of PKU treatment. Washington, DC – December 5, 2024 – …See details»

Support - NPKUA

The NPKUA is an independent organization, and a registered 501(c)3 EIN: 26-2849140. 2014 Electric Road, #212 Roanoke, VA 24018 Phone: 855.675.8211See details»

About Us | National Alliance against Disparities in Patient Health

The National Alliance against Disparities in Patient Health (NADPH) is a nonprofit, health research organization applying scientific research and technology, community education and outreach, …See details»

National Alliance Against Disparities in Patient Health

Legal name of organization: National Alliance against Disparities in Patient Health. EIN for payable organization: 82-3875459 Close. EIN. 82-3875459. NTEE code info. Other Medical …See details»