ORPHANET
ORPHANET
Industry:
Health Care Medical Service Industry
Founded:
2002-01-01
Address:
Paris, Ile-de-France, France
Country:
France
Website Url:
http://www.orpha.net
Total Employee:
1+
Status:
Active
Contact:
33-1565-38137
Email Addresses:
[email protected]
Technology used in webpage:
IPhone / Mobile Compatible COVID-19 Apple Whitelist SPIP
Official Site Inspections
http://www.orpha.net Semrush global rank: 57.06 K Semrush visits lastest month: 2.07 M
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More informations about "Orphanet"
Diseases - Orphanet
Help. Watch the 'search for a disease' video tutorial; Procedures: Orphanet inventory of rare diseases; Naming rules for the rare disease nomenclature in EnglishSee details»
Orphanet: Quality charterAbout Orphanet
Orphanet and the ORPHA nomenclature are also cited as key resources in every European legislative text on rare diseases and as key measures in many national plans/strategies for …See details»
ORPHANET - National Organization for Rare Disorders
The ORPHANET is a database dedicated to providing information on rare diseases and orphan drugs. Its access is free of charge. It includes an encyclopedia of rare diseases covering more …See details»
Orphanet - Wikipedia
Orphanet is an organisation and knowledge base dedicated to rare diseases as well as corresponding diagnosis, orphan drugs, clinical trials and expert networks. Orphanet was founded in France in 1997 by Inserm, the French National Institute of Health and Medical Research. The website is managed by a network of academic establishments from 40 countries, led by Inserm, and is a Europe…See details»
Orphanet - YouTube
Orphanet (www.orpha.net) is the reference resource on rare diseases and orphan drugs. You can view here a number of videos that explain the Orphanet database and how to use the Orphanet website.See details»
National Clinical Programme for Rare Diseases - HSE.ie
Whether it be expert centre, laboratory, patient organization, research project, clinical trial, registry or biobank, or as orphan drug sponsorship. Activity is registered by diagnosis or diagnoses …See details»
VocabularyDocumentation - National Library of Medicine
Web sites: https://www.orphadata.com/ https://www.orpha.net/ Authority Orphanet was created by the French National Institute of Health and Medical Research (INSERM ...See details»
Patient organisations - Orphanet
Help. Data collection and registration of patient organisations in Orphanet Orphanet provides information on patient organisations, umbrella organisations and alliances dedicated to one …See details»
[Orphanet: a European database for rare diseases] - PubMed
Mar 1, 2008 Orphanet is a European initiative that aims to improve the management and treatment of rare diseases. It comprises a database dedicated to information on rare diseases …See details»
API Orphadata
The API Orphadata provides access to Orphanet's knowledge base, offering data to improve care for rare disease patients.See details»
Representation of rare diseases in health information systems: The ...
Mar 15, 2012 ORPHANET (www.orpha.net) is an information portal on rare diseases and orphan drugs jointly established in 1997 by the Institut National de la Santé et de la Recherche …See details»
Neurofibromatosis | Information Prescriptions | Family Library
Orpha.net. NORD - Neurofibromatosis. The National Organization of Rare Diseases (NORD) collects current information on the diagnosis, symptoms and treatment of rare diseases. It also …See details»
ORPHA Nomenclature (JULY 2024) - RD-CODE project
It intends to support Member States in the implementation of the ORPHA nomenclature to rare diseases-specific codification systems. Starting with countries that have no systematic …See details»
Orphanet: Quality charter
Products withdrawn from the market for economic or therapeutic reasons : For example, thalidomide widely much used as a hypnotic drug some years ago and was then withdrawn …See details»
FREE ACCESS PRODUCTS DESCRIPTION - Orphadata
ORPHA:670 PI IDS syndrome, identified as “RootDisorder”, is “moved to” the active entity ORPHA:33364 Trichothiodystrophy, identified as “TargetDisorder”. …See details»
Orphanet a comprehensive information service for RD - EURORDIS …
Www.orpha.net Almost all of the people with rare disease (>98%) have one of the 390 most prevalent diseases (more common than 1 per 100,000) Most (89.1%) of rare diseases are very …See details»
Research and trials - Orphanet
Warning. The data collection takes place in Orphanet consortium countries and is currently ongoing. Research related resources (research projects, clinical trials, patient registries, …See details»
orpha.net Reviews: Is this site a scam or legit? – Scam Detector
Orpha.net Review. The Scam Detector website Validator gives orpha.net one of the lowest trust scores on the platform: 13.7.It signals that the business could be defined by the following tags: …See details»
Orphanet : Search for an orphan drug
Help. Procedures: Data collection and registration of medicinal products intended for rare diseases in Orphanet. Orphanet provides an inventory of drugs at all stages of development …See details»