ORPHANET
ORPHANET
Industry:
Health Care Medical Service Industry
Founded:
2002-01-01
Address:
Paris, Ile-de-France, France
Country:
France
Website Url:
http://www.orpha.net
Total Employee:
1+
Status:
Active
Contact:
33-1565-38137
Email Addresses:
[email protected]
Technology used in webpage:
IPhone / Mobile Compatible COVID-19 Apple Whitelist SPIP
Official Site Inspections
http://www.orpha.net Semrush global rank: 57.06 K Semrush visits lastest month: 2.07 M
Unable to get host informations!!!
More informations about "Orphanet"
Diseases - Orphanet
Dear Orphanet User, Your opinion is essential in improving the services offered by Orphanet. Your contribution to this survey is also indispensable for our funding agencies. Please could …See details»
Orphanet: Quality charterAbout Orphanet
Orphanet and the ORPHA nomenclature are also cited as key resources in every European legislative text on rare diseases and as key measures in many national plans/strategies for …See details»
ORPHANET - National Organization for Rare Disorders
Find A Rare Disease Organization; A Parent’s Guide to Rare Disease Diagnosis in Children; ... https://www.orpha.net . About ORPHANET. The ORPHANET is a database dedicated to …See details»
Orphanet - Wikipedia
Orphanet logo. Orphanet is an organisation and knowledge base dedicated to rare diseases as well as corresponding diagnosis, orphan drugs, clinical trials and expert networks. [1]Orphanet …See details»
Orphanet collaboration - World Health Organization (WHO)
The WHO International Clinical Trials Registry Platform aims to offer a complete view of clinical research, which is accessible to all those involved in health care decision making.See details»
Home page | Orphanet Journal of Rare Diseases
Orphanet (www.orpha.net) is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. …See details»
National Clinical Programme for Rare Diseases - HSE.ie
Whether it be expert centre, laboratory, patient organization, research project, clinical trial, registry or biobank, or as orphan drug sponsorship. Activity is registered by diagnosis or diagnoses …See details»
VocabularyDocumentation - National Library of Medicine
Web sites: https://www.orphadata.com/ https://www.orpha.net/ Authority Orphanet was created by the French National Institute of Health and Medical Research (INSERM ...See details»
Orphadata – Orphanet datasets
300 million people in the world live with a rare disease, united by common challenges, including that of poor visibility of their disease. Orphanet’s knowledge base, accessible through …See details»
The portal for rare diseases and orphan drugs - PMC
The website of the organization, www.orpha.net is a vast repository of information on orphan drugs and rare diseases with the apt maxim, ... ICD-10 (ICD-10: International Classification of …See details»
Patient organisations - Orphanet
Help. Data collection and registration of patient organisations in Orphanet Orphanet provides information on patient organisations, umbrella organisations and alliances dedicated to one …See details»
orpha.net Reviews: Is this site a scam or legit? – Scam Detector
Orpha.net Review. The Scam Detector website Validator gives orpha.net one of the lowest trust scores on the platform: 13.7.It signals that the business could be defined by the following tags: …See details»
Orpha - Net Patient Foundation
Got questions? Call 1-800-MEDIGAP Rare diseases, often referred to as orphan diseases, pose significant challenges for patients, caregivers, and healthcare professionals. These conditions …See details»
Search for a rare disease using Orphanet - YouTube
This video will show you how to search for a rare disease using Orphanet, the reference resource for rare diseases and orphan drugs (www.orpha.net).Subtitles...See details»
Orphanet - Wikiwand
Orphanet is an organisation and knowledge base dedicated to rare diseases as well as corresponding diagnosis, orphan drugs, clinical trials and expert networks. [1]Orphanet logo. …See details»
ORPHAcodes Mappings Browser
The Orphanet nomenclature is a multilingual, standardised, controlled medical terminology specific to rare diseases, that includes all clinical entities registered in the Orphanet knowledge …See details»
Research and trials - Orphanet
Warning. The data collection takes place in Orphanet consortium countries and is currently ongoing. Research related resources (research projects, clinical trials, patient registries, …See details»
Clinical Practice Guidelines for Rare Diseases: The Orphanet …
In order to contribute to the improvement of the diagnosis, treatment and care of patients, Orphanet (www.orpha.net) has set up a procedure for the selection, quality evaluation and …See details»
The RaDiCo information system for rare disease cohorts
Apr 8, 2025 To achieve semantically interoperable data exchange, we used controlled terminology standards, the Orphanet terminology for RDs [] and the Medical Dictionary for …See details»
Research and trials - Orphanet
Warning. The data collection takes place in Orphanet consortium countries and is currently ongoing. Research related resources (research projects, clinical trials, patient registries, …See details»