PACHYONYCHIA CONGENITA PROJECT
Pachyonychia Congenita Project aims to identify effective therapies and a cure for Pachyonychia Congenita.
PACHYONYCHIA CONGENITA PROJECT
Industry:
Health Care Non Profit
Founded:
2003-01-01
Address:
Holladay, Tennessee, United States
Country:
United States
Website Url:
http://www.pachyonychia.org
Total Employee:
1+
Status:
Active
Contact:
+1 801-987-8758
Email Addresses:
[email protected]
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http://www.pachyonychia.org
- Host name: 173.170.174.34.bc.googleusercontent.com
- IP address: 34.174.170.173
- Location: United States
- Latitude: 37.751
- Longitude: -97.822
- Timezone: America/Chicago
More informations about "Pachyonychia Congenita Project"
International Pachyonychia Congenita Research …
PC Project is the only organization in the world to hold a Physician Verified Patient Registry for Pachyonychia Congenita and similar diseases with painful plantar keratoderma, (thick skin or calluses on the bottoms of the feet). ... The …See details»
Legacy Society (Planned Giving) - pachyonychia.org
Email: [email protected] Telephone: 801-987-8758 Mail: PC Project, PO Box 17850, Holladay, UT 84117. Click here to download our Legacy Society brochure. Ways to Give Bequest. Bequests to PC Project may be made in the …See details»
Pachyonychia Congenita Project - National Organization for Rare …
Dec 7, 2015 International Pachyonychia Congenita Consortium – over 150 professionals dedicated to collaborating on PC research; Those affected with Pachyonychia Congenita and …See details»
Pachyonychia Congenita Project - National Organization for Rare …
Find A Rare Disease Organization; Stay informed. ... / Pachyonychia Congenita Project. Set Valu. Keyword Search. Set Valu. Keyword Search. Pachyonychia Congenita Project. 111 East 5600 …See details»
British Association of Dermatologists - bad.org.uk
Pachyonychia-congenita-project Pachyonychia Congenita Project PC Project is dedicated to finding effective treatments and a cure for Pachyonychia Congenita, a painful genetic skin …See details»
Pachyonychia congenita - Wikipedia
Pachyonychia Congenita Project is a non-profit dedicated to finding a cure for PC. The organization houses a genetic registry (the International PC Research Registry) and offers free …See details»
PC Project (@pachyonychia) • Instagram photos and videos
To this day, PC Project is the only organization 100% focused on helping people with Pachyonychia Congenita, advancing PC treatments, and working to find a cure in our lifetime. …See details»
For Professionals - Pachyonychia
PC Project collaborates with industry, researchers, and clinicians to find effective treatments and a cure for Pachyonychia Congenita. Refer a patient. PC Project is the only organization in the …See details»
Toward a Treatment for Pachyonychia Congenita: Report on the …
The International Pachyonychia Congenita Consortium (IPCC) is a group of physicians and scientists who have agreed to work together to develop therapeutics for the rare skin disorder …See details»
Pachyonychia congenita - DermNet
What is pachyonychia congenita? Pachyonychia congenita is the name given to a group of rare, inherited disorders of keratinisation — the process by which keratin is formed and deposited in the outermost layer of the skin.. Pachyonychia …See details»
Pachyonychia Congenita: A Research Agenda Leading to
Apr 1, 2024 Pachyonychia congenita (PC) is a dominantly inherited genetic disorder of cornification. PC stands out among other genodermatoses because despite its rarity, it has …See details»
How You Can Help - pachyonychia.org
Donate your car through Careasy PC Project link or call 855-500-RIDE (7433) and tell them car donation is for Pachyonychia Congenita Project (PC Project). Currently car donations can only …See details»
pachyonychia congenita - National Organization for Rare Disorders
Pachyonychia congenita. The information provided on this page is for informational purposes only. The National Organization for Rare Disorders (NORD) does not endorse the information …See details»
Pachyonychia Congenita: Research & Resources - National …
Research Progress Related to Pachyonychia Congenita Investigators at the National Institutes of Health and other research centers across the country are working to develop therapies for PC. …See details»
Pachyonychia Congenita: A Research Agenda Leading to New …
Oct 1, 2023 Pachyonychia congenita (PC) is a dominantly inherited genetic disorder of cornification. PC stands out among other genodermatoses because despite its rarity, it has …See details»
Pachyonychia Congenita - Thick Nails & Calluses | NIAMS
Overview of Pachyonychia Congenita. Pachyonychia congenita (PC) is a rare genetic disorder that primarily affects the skin and nails. The symptoms usually begin at birth or early in life, …See details»
Ways You Can Give - pachyonychia.org
Pachyonychia Congenita Fund (Or Pachyonychia Congenita Project) Tax ID#: 68-0567493 is a 501(c)3 qualified non-profit charity in the USA. Pachyonychia Congenita (PC) Project Europe …See details»
Medical and Scientific Advisory Board - Pachyonychia
The organization is where it is today because of the sacrifice and contribution of each person. The following individuals will be forever in our hearts: ... [email protected]. 801-987-8758. …See details»
Pachyonychia Congenita - Symptoms, Causes, Treatment | NORD
May 23, 2018 Mutation of a type II keratin gene (K6a) in pachyonychia congenita. Nat Genet. 1995; 10:363-365. McLean WHI, Rugg EL, Lunny DP, et al. Keratin 16 and keratin 17 …See details»