PROTEUS SYNDROME FOUNDATION
Proteus Syndrome Foundation is a nonprofit organization that helps proteus patients by offering family support, education & health services.
PROTEUS SYNDROME FOUNDATION
Social Links:
Industry:
Charity Child Care Health Care Medical Non Profit
Address:
Colorado Springs, Colorado, United States
Country:
United States
Website Url:
http://www.proteus-syndrome.org
Status:
Active
Technology used in webpage:
Viewport Meta IPhone / Mobile Compatible Google Font API Google Analytics Google Tag Manager Google Universal Analytics Global Site Tag Euro ReCAPTCHA AJAX Libraries API
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Official Site Inspections
http://www.proteus-syndrome.org
- Host name: pages-custom-16.weebly.com
- IP address: 199.34.228.100
- Location: San Francisco United States
- Latitude: 37.7642
- Longitude: -122.3993
- Metro Code: 807
- Timezone: America/Los_Angeles
- Postal: 94107
More informations about "Proteus Syndrome Foundation"
Proteus Syndrome Foundation - National Organization for Rare …
The Proteus Syndrome Foundation is a national, voluntary, non-profit organization dedicated to providing information, assistance, and support to children with proteus syndrome and their …See details»
Proteus Syndrome Foundation | Colorado Springs CO - Facebook
Proteus Syndrome Foundation, Colorado Springs. 622 likes · 2 talking about this. The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of …See details»
Proteus syndrome - Wikipedia
Proteus syndrome is a rare genetic disorder that can cause tissue overgrowth involving all three embryonic lineages. Patients with Proteus syndrome tend to have an increased risk of embryonic tumor development. The clinical symptoms and radiographic findings of Proteus syndrome are highly variable, as are its orthopedic manifestations. Only a few more than 200 cases have been confirmed worldwide, with estimates that about 12…See details»
Proteus-like syndrome - National Organization for Rare Disorders
Disease Overview Proteus-like syndrome describes patients who do not meet the diagnostic criteria for Proteus syndrome but who share a multitude of characteristic clinical features of the …See details»
Entry - #176920 - PROTEUS SYNDROME - OMIM - (OMIM.ORG)
Proteus syndrome is a highly variable, severe disorder of asymmetric and disproportionate overgrowth of body parts, connective tissue nevi, epidermal nevi, dysregulated adipose tissue, …See details»
Proteus Syndrome Foundation - GuideStar Profile
TO PROVIDE FAMILY SUPPORT IN THE FORM OF EDUCATION AND NETWORKING INDIVIDUALS LIVING WITH PROTEUS SYNDROME WITH OTHER FAMILIES AND …See details»
Proteus Syndrome - Symptoms, Causes, Treatment
Aug 4, 2023 Learn about Proteus Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resourcesSee details»
Proteus Syndrome Foundation | Legit, CEO Salary, Mission, 990 …
The Proteus Syndrome Foundation is a nonprofit organization committed to offering support to families affected by Proteus Syndrome. They achieve this through educational resources and …See details»
Proteus Syndrome Foundation - Nonprofit Explorer - ProPublica
Since 2013, the IRS has released data culled from millions of nonprofit tax filings. Use this database to find organizations and see details like their executive compensation, revenue and …See details»
Proteus Syndrome Foundation …
104 Followers, 55 Following, 22 Posts - Proteus Syndrome Foundation (@proteussyndromefoundation) on Instagram: "We provide support through family conferences, family sharing through our PSF Forum on our web page, …See details»
Proteus Syndrome: Symptoms & Causes - Cleveland Clinic
Proteus syndrome is a rare genetic condition that causes excessive growth of your bones, skin, organs and tissues.See details»
Proteus Syndrome in a Young Adolescent - Southern Medical …
Apr 14, 2023 Introduction Proteus syndrome (PS) is a rare, progressive, asymmetric overgrowth syndrome that presents with symptoms of varying severity. PS most commonly affects the …See details»
Proteus Syndrome - Positive Exposure
Proteus syndrome is a rare, extremely variable disorder of unknown cause that may be characterized by partial enlargement of the hands and/or feet; overgrowth of one side of the …See details»
Charity Navigator - Rating for Proteus Syndrome Foundation
Proteus Syndrome Foundation has earned a 0/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in CORDOVA, TN.See details»
Proteus Syndrome - GeneReviews® - NCBI Bookshelf
Aug 9, 2012 Proteus syndrome (PS) is characterized by progressive segmental or patchy overgrowth most commonly affecting the skeleton, skin, adipose, and central nervous …See details»
PROTEUS SYNDROME FOUNDATION UK - 1077796
The relief of persons with Proteus Syndrome and the relief of their families and carers. The advancement of the education of the public in the subject of proteus syndrome.See details»
PIK3CA-Related Overgrowth Spectrum - National Organization for …
Mar 3, 2025 Disorders with Similar Symptoms Proteus syndrome is a rare disorder characterized by asymmetric, patchy overgrowth of various tissues of the body. The cause of the disorder is …See details»
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The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, …See details»
Proteus syndrome with late diagnosis confirmation: a case report
May 8, 2025 Proteus syndrome (PS) is a rare, highly polymorphous and complex disorder characterized by assymetric and/or disproportional overgrowth of limbs, hamartomas and …See details»
Proteus syndrome - Simple English Wikipedia, the free encyclopedia
Proteus syndrome is a chronic disorder that scientists believe Joseph Carey Merrick (also known as Elephant Man) had contracted from birth. Victims of Proteus syndrome suffer large tumours …See details»