PROTEUS SYNDROME FOUNDATION
Proteus Syndrome Foundation is a nonprofit organization that helps proteus patients by offering family support, education & health services.
PROTEUS SYNDROME FOUNDATION
Social Links:
Industry:
Charity Child Care Health Care Medical Non Profit
Address:
Colorado Springs, Colorado, United States
Country:
United States
Website Url:
http://www.proteus-syndrome.org
Status:
Active
Technology used in webpage:
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Official Site Inspections
http://www.proteus-syndrome.org
- Host name: pages-custom-16.weebly.com
- IP address: 199.34.228.100
- Location: San Francisco United States
- Latitude: 37.7642
- Longitude: -122.3993
- Metro Code: 807
- Timezone: America/Los_Angeles
- Postal: 94107
More informations about "Proteus Syndrome Foundation"
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The Proteus Syndrome Foundation is a national, voluntary, non-profit organization dedicated to providing information, assistance, and support to children with proteus syndrome and their โฆSee details»
Proteus syndrome - National Organization for Rare Disorders
Proteus syndrome (PS) is a very rare and complex hamartomatous overgrowth disorder characterized by progressive overgrowth of the skeleton, skin, adipose, and. ... The National โฆSee details»
Proteus syndrome - Wikipedia
Proteus syndrome is a rare disorder with a genetic background that can cause tissue overgrowth involving all three embryonic lineages. Patients with Proteus syndrome tend to have an increased risk of embryonic tumor development. The clinical and radiographic symptoms of Proteus syndrome are highly variable, as are its orthopedic manifestations. See details»
Proteus syndrome | About the Disease | GARD - Genetic and Rare โฆ
Proteus syndrome is characterized by excessive growth of a part or portion of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of the body โฆSee details»
Proteus Syndrome Symptoms, Causes, Treatment, and โฆ
Apr 6, 2024 Proteus syndrome is a rare genetic disorder that causes the overgrowth or disproportionate growth of bone, skin, and other tissues in the body. ... Proteus Syndrome. NORD (National Organization for Rare โฆSee details»
The challenges of Proteus syndrome: diagnosis and management
Aug 2, 2006 Proteus syndrome (PS) is a disorder of patchy or mosaic postnatal overgrowth of unknown etiology. The onset of overgrowth typically occurs in infancy and can involve any โฆSee details»
Proteus Syndrome: One of the Rarest Diseases in the World
Feb 20, 2024 Proteus syndrome is caused by a mutation in a specific gene called AKT1 and is present at birth. This gene makes a protein responsible for controlling cell growth. In some โฆSee details»
Proteus Syndrome: Frequently Asked Questions - National Human โฆ
Aug 26, 2013 Scientists studying Proteus syndrome have previously hypothesized, or guessed, that the genetic alteration responsible for causing the condition would be mosaic. This is โฆSee details»
Proteus Syndrome - Symptoms, Causes, Treatment | NORD
Aug 4, 2023 Disease Overview. Summary. Proteus syndrome is a rare disorder characterized by overgrowth of various tissues of the body. The cause of the disorder is a mosaic variant in a โฆSee details»
Proteus Syndrome - GeneReviews® - NCBI Bookshelf
Aug 9, 2012 Proteus syndrome (PS) is characterized by progressive segmental or patchy overgrowth most commonly affecting the skeleton, skin, adipose, and central nervous systems. In most individuals PS has modest or no โฆSee details»
Proteus Syndrome: Symptoms & Causes - Cleveland Clinic
Nov 29, 2022 Proteus syndrome is an extremely rare condition that affects fewer than 1 in 1 million people around the world. Itโs difficult to diagnose the disease because itโs so rare and โฆSee details»
Understanding Proteus Syndrome: Causes, Symptoms, and โฆ
Sep 3, 2023 Proteus Syndrome Foundation: The Proteus Syndrome Foundation is a non-profit organization dedicated to supporting individuals with Proteus syndrome and their families. โฆSee details»
Proteus Syndrome: Case Report and Updated Literature Review
Proteus syndrome (PS) is an exceptionally uncommon genetic disorder that has been documented in only approximately 250 cases in the literature spanning the past four decades. โฆSee details»
Proteus Syndrome Foundation - National Organization for Rare โฆ
The Proteus Syndrome Foundation is a national, voluntary, non-profit organization dedicated to providing information, assistance, and support to children with proteus syndrome and their โฆSee details»
Optic nerve compression: a rare ocular manifestation of Proteus โฆ
Proteus syndrome is characterized by progressive, asymmetric, and distorting overgrowth that involves the skeletal, cutaneous, subcutaneous, and nervous systems. We report the case of a โฆSee details»
PIK3CA-Related Overgrowth Spectrum - National Organization for โฆ
Oct 3, 2022 Proteus syndrome is a rare disorder characterized by asymmetric, patchy overgrowth of various tissues of the body. The cause of the disorder is a mosaic variant in a โฆSee details»
Proteus Syndrome | Overgrowth Syndromes: A Clinical Guide
Proteus syndrome (omim #176920) is a mosaic overgrowth disorder that is complex, variable, and generally severe. It can cause overgrowth of nearly any tissue. The common manifestations โฆSee details»
Charity Navigator - Rating for Proteus Syndrome Foundation
Proteus Syndrome Foundation has earned a 0/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in Cordova, TN. ... Simply enter the organization's name โฆSee details»
Entry - #176920 - PROTEUS SYNDROME - OMIM
Lindhurst et al. (2011) performed exome sequencing of 11 DNA samples from 6 patients with Proteus syndrome as well as 1 sample each from 5 unaffected parents and from 1 patient's โฆSee details»