PROTEUS SYNDROME FOUNDATION

proteus-syndrome-foundation-logo

Proteus Syndrome Foundation is a nonprofit organization that helps proteus patients by offering family support, education & health services.

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PROTEUS SYNDROME FOUNDATION

Social Links:

Industry:
Charity Child Care Health Care Medical Non Profit

Address:
Colorado Springs, Colorado, United States

Country:
United States

Website Url:
http://www.proteus-syndrome.org

Status:
Active

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Official Site Inspections

http://www.proteus-syndrome.org

  • Host name: pages-custom-16.weebly.com
  • IP address: 199.34.228.100
  • Location: San Francisco United States
  • Latitude: 37.7642
  • Longitude: -122.3993
  • Metro Code: 807
  • Timezone: America/Los_Angeles
  • Postal: 94107

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More informations about "Proteus Syndrome Foundation"

Proteus Syndrome Foundation - National Organization for Rare โ€ฆ

The Proteus Syndrome Foundation is a national, voluntary, non-profit organization dedicated to providing information, assistance, and support to children with proteus syndrome and their โ€ฆSee details»

Proteus syndrome - National Organization for Rare Disorders

Proteus syndrome (PS) is a very rare and complex hamartomatous overgrowth disorder characterized by progressive overgrowth of the skeleton, skin, adipose, and. ... The National โ€ฆSee details»

Proteus syndrome - Wikipedia

Proteus syndrome is a rare disorder with a genetic background that can cause tissue overgrowth involving all three embryonic lineages. Patients with Proteus syndrome tend to have an increased risk of embryonic tumor development. The clinical and radiographic symptoms of Proteus syndrome are highly variable, as are its orthopedic manifestations. See details»

Proteus syndrome | About the Disease | GARD - Genetic and Rare โ€ฆ

Proteus syndrome is characterized by excessive growth of a part or portion of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of the body โ€ฆSee details»

Proteus Syndrome Symptoms, Causes, Treatment, and โ€ฆ

Apr 6, 2024 Proteus syndrome is a rare genetic disorder that causes the overgrowth or disproportionate growth of bone, skin, and other tissues in the body. ... Proteus Syndrome. NORD (National Organization for Rare โ€ฆSee details»

The challenges of Proteus syndrome: diagnosis and management

Aug 2, 2006 Proteus syndrome (PS) is a disorder of patchy or mosaic postnatal overgrowth of unknown etiology. The onset of overgrowth typically occurs in infancy and can involve any โ€ฆSee details»

Proteus Syndrome: One of the Rarest Diseases in the World

Feb 20, 2024 Proteus syndrome is caused by a mutation in a specific gene called AKT1 and is present at birth. This gene makes a protein responsible for controlling cell growth. In some โ€ฆSee details»

Proteus Syndrome: Frequently Asked Questions - National Human โ€ฆ

Aug 26, 2013 Scientists studying Proteus syndrome have previously hypothesized, or guessed, that the genetic alteration responsible for causing the condition would be mosaic. This is โ€ฆSee details»

Proteus Syndrome - Symptoms, Causes, Treatment | NORD

Aug 4, 2023 Disease Overview. Summary. Proteus syndrome is a rare disorder characterized by overgrowth of various tissues of the body. The cause of the disorder is a mosaic variant in a โ€ฆSee details»

Proteus Syndrome - GeneReviews® - NCBI Bookshelf

Aug 9, 2012 Proteus syndrome (PS) is characterized by progressive segmental or patchy overgrowth most commonly affecting the skeleton, skin, adipose, and central nervous systems. In most individuals PS has modest or no โ€ฆSee details»

Proteus Syndrome: Symptoms & Causes - Cleveland Clinic

Nov 29, 2022 Proteus syndrome is an extremely rare condition that affects fewer than 1 in 1 million people around the world. Itโ€™s difficult to diagnose the disease because itโ€™s so rare and โ€ฆSee details»

Understanding Proteus Syndrome: Causes, Symptoms, and โ€ฆ

Sep 3, 2023 Proteus Syndrome Foundation: The Proteus Syndrome Foundation is a non-profit organization dedicated to supporting individuals with Proteus syndrome and their families. โ€ฆSee details»

Proteus Syndrome: Case Report and Updated Literature Review

Proteus syndrome (PS) is an exceptionally uncommon genetic disorder that has been documented in only approximately 250 cases in the literature spanning the past four decades. โ€ฆSee details»

Proteus Syndrome Foundation - National Organization for Rare โ€ฆ

The Proteus Syndrome Foundation is a national, voluntary, non-profit organization dedicated to providing information, assistance, and support to children with proteus syndrome and their โ€ฆSee details»

Optic nerve compression: a rare ocular manifestation of Proteus โ€ฆ

Proteus syndrome is characterized by progressive, asymmetric, and distorting overgrowth that involves the skeletal, cutaneous, subcutaneous, and nervous systems. We report the case of a โ€ฆSee details»

PIK3CA-Related Overgrowth Spectrum - National Organization for โ€ฆ

Oct 3, 2022 Proteus syndrome is a rare disorder characterized by asymmetric, patchy overgrowth of various tissues of the body. The cause of the disorder is a mosaic variant in a โ€ฆSee details»

Proteus Syndrome | Overgrowth Syndromes: A Clinical Guide

Proteus syndrome (omim #176920) is a mosaic overgrowth disorder that is complex, variable, and generally severe. It can cause overgrowth of nearly any tissue. The common manifestations โ€ฆSee details»

Charity Navigator - Rating for Proteus Syndrome Foundation

Proteus Syndrome Foundation has earned a 0/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in Cordova, TN. ... Simply enter the organization's name โ€ฆSee details»

Entry - #176920 - PROTEUS SYNDROME - OMIM

Lindhurst et al. (2011) performed exome sequencing of 11 DNA samples from 6 patients with Proteus syndrome as well as 1 sample each from 5 unaffected parents and from 1 patient's โ€ฆSee details»

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