RARESHARE
RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders. While rare disorders seem to impact only a small portion of the population, together they affect over 30 million people in the United States and Europe. Due to the comparably low level of occurrences of individual rare disorders, there is often a lack of information and support for patients and their families. We're working to change this. http://www.RareShare.org
RARESHARE
Industry:
Health Care Medical Social Media Web Hosting
Founded:
2008-03-01
Address:
New York, New York, United States
Country:
United States
Website Url:
http://www.RareShare.org
Total Employee:
1+
Status:
Active
Email Addresses:
[email protected]
Technology used in webpage:
Viewport Meta IPhone / Mobile Compatible SPF SSL By Default Google Analytics LetsEncrypt Apple Mobile Web Clips Icon WordPress Google Universal Analytics Font Awesome
Similar Organizations
dermRounds Dermatology Network
dermRounds Dermatology Network is a social networking platform for dermatologists and health professionals that focusses on skin health.
HCP Buzz
HCP Buzz is an online marketing platform that helps healthcare professionals maintain their online presence in social media.
Current Employees Featured
Founder
Official Site Inspections
http://www.RareShare.org Semrush global rank: 4.47 M Semrush visits lastest month: 2.43 K
- Host name: ec2-54-148-113-89.us-west-2.compute.amazonaws.com
- IP address: 54.148.113.89
- Location: Boardman United States
- Latitude: 45.8491
- Longitude: -119.7143
- Metro Code: 810
- Timezone: America/Los_Angeles
- Postal: 97818
More informations about "RareShare"
Rareshare
RareShare is built on a premise that sharing information is good, especially when it comes to information about rare diseases. The more you share the more you have an opportunity to …See details»
Rare Genomics Institute
RareShare is an online social network for patients, families, healthcare professionals and others affected by rare disease. We have over 8000 members in almost 1000 different rare disease …See details»
RareShare - Rare Genomics Institute
RareShare is an online social network for patients, families, healthcare professionals and others affected by rare disease. We have over 8000 members in almost 1000 different rare disease communities. RareShare connects …See details»
What is Systemic Capillary Leak Syndrome? - Rareshare
Systemic Capillary Leak Syndrome (SCLS) is an exceedingly rare, life- and limb-threatening disorder characterized by acute and severe recurrent attacks featuring a rapid fall in blood …See details»
Rare Genomics relaunches RareShare, a rare disorder social …
Oct 13, 2017 · Rare Genomics Institute (RG) utilizes RareShare, an online social hub for those affected by rare medical disorders. The RareShare website, www.Rareshare.org was …See details»
RareShare - Crunchbase Company Profile & Funding
RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders. While rare disorders seem to impact only a small …See details»
RareShare - Disability Information Scotland
RareShare is a new online network dedicated to connecting patients, families and healthcare professionals affected by rare medical disorders. The website currently includes almost seven …See details»
RareShare.org - Facebook
RareShare.org. 611 likes. Bringing together patients, caregivers and researchers of rare genetic disorders and diseases. "Tell your story or learn about others."See details»
Rareshare
RareShare is an online social hub for those affected by rare medical disorders. Whether you are a patient, family member, friend of the family, or healthcare professional, you are invited to join …See details»
Rare Genomics / RareShare Podcast Series: Ask the Expert
Feb 7, 2022 · Visit RareShare.org to find your rare disease community. We talk to rare disease experts about treatments, trials, and new developments, and rare disease patients share their …See details»
RareShare.org - What is RareShare.org? We are a completely.
May 14, 2020 · What is RareShare.org? We are a completely volunteer-based nonprofit running a free platform for #raredisease patients, family members, and caregivers to...See details»
Systemic Capillary Leak Syndrome - RareShare - Rare Genomics …
Systemic Capillary Leak syndrome is a rare disorder due to increased capillary permeability. This increased permeability will cause plasma and other blood components from blood vessels to …See details»
Rareshare
To sign-in to the new RareShare website, you will need to: Enter your orignal Rareshare 1.0 email and password below. You will receive an e-mail with instructions to to reset your password …See details»
Rare Genomics Institute and Amazon Web Services Collaborate to …
Mar 3, 2022 · As part of the collaboration with the Rare Genomics Institute, AWS is providing unrestricted financial support funds for an array of RareShare projects, AWS computing …See details»
RareShare.org - A non-profit organization called... - Facebook
Aug 30, 2018 · A non-profit organization called #MemoryMatters will be hosting a free support group for caregivers of people with Frontotemporal Dementia on September 10th. Check out …See details»
Rare Genomics Institute and Amazon Web Services Collaborate to …
Mar 3, 2022 · RareShare is a unique social hub serving hundreds of rare disorder communities since 2008, allowing direct exchange of in Washington, D.C. March 2, 2022. The Rare …See details»
RareShare - Company Profile - Tracxn
Oct 18, 2024 · Social hub for patients suffering from rare medical disorders. It connects patients, families, and healthcare professionals to share knowledge and personal experiences about …See details»
Dent Disease - Rare Kidney Stone Consortium
Join the Dent Disease Registry! The Registry is one of the easiest ways for patients to help and the Registry is also one of our most important tools to learn more about Dent disease. We …See details»
Rareshare
Nov 7, 2024 · Morgellons is a condition characterized by a range of symptoms including crawling, biting, and stinging sensations on the skin; finding fibers on or under the skin; and persistent …See details»
RareShare is Open for Signup! - Private Torrent Trackers & File …
Feb 5, 2015 · RareShare is a Private Torrent Tracker for TV / RADIO. Sign up and join the community! Signup Link: http://rareshare.me/signup.phpSee details»