SANFILIPPO CHILDREN'S FOUNDATION

sanfilippo-childrens-foundation-logo

SCF is a not for profit driving clinical research, enabling access to treatment and improving life quality for Sanfilippo children.

#SimilarOrganizations #People #Website #More

SANFILIPPO CHILDREN'S FOUNDATION

Social Links:

Industry:
Association Biotechnology Education Medical

Founded:
2013-09-01

Address:
Freshwater, Queensland, Australia

Country:
Australia

Website Url:
http://www.sanfilippo.org.au

Total Employee:
1+

Status:
Active

Email Addresses:
[email protected]

Technology used in webpage:
Viewport Meta IPhone / Mobile Compatible SPF SSL By Default Google Font API Google Tag Manager Content Delivery Network Font Awesome Apache Mobile Non Scaleable Content


Similar Organizations

not_available_image

Western IRB

Western IRB is a Clinical research institute providing training and consultation on human protections.


Current Advisors List

mark-arnold_image

Mark Arnold Founding Director @ Sanfilippo Children's Foundation
Board_member
2013-09-01

Founder


mark-arnold_image

Mark Arnold

Official Site Inspections

http://www.sanfilippo.org.au Semrush global rank: 1.26 M Semrush visits lastest month: 23.7 K

  • Host name: ec2-52-63-14-105.ap-southeast-2.compute.amazonaws.com
  • IP address: 52.63.14.105
  • Location: Sydney Australia
  • Latitude: -33.8591
  • Longitude: 151.2002
  • Timezone: Australia/Sydney
  • Postal: 2000

Loading ...

More informations about "Sanfilippo Children's Foundation"

Sanfilippo Children’s Foundation - National …

Https://www.sanfilippo.org.au About Sanfilippo Children’s Foundation Sanfilippo Children’s Foundation is a not for profit organization dedicated to driving clinical research, enabling access to effective treatments and …See details»

Sanfilippo Children's Foundation - Australian Communities …

Sanfilippo Children’s Foundation drives research for a world without Sanfilippo syndrome, a genetic childhood dementia with a life expectancy of only 12-20 years of age. ... Sanfilippo …See details»

Sanfilippo Children's Foundation - Facebook

Sanfilippo Children's Foundation. 9,971 likes · 2 talking about this. Sanfilippo Children's Foundation is a not-for-profit research group. Go to: …See details»

Cure Sanfilippo Foundation | To cure Sanfilippo …

Jul 25, 2025 Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome, so parents can dream of their children’s futures again. Help …See details»

Solving Sanfilippo Syndrome symposium - hgsa.org.au

The Sanfilippo Children's Foundation is hosting the 2023 SOlving Sanfilippo Syndrome symposium on 19th and 20th May at SAHMRI in Adelaide. More information, the preliminary …See details»

Sanfilippo Children's Foundation | ACNC - acnc.gov.au

We take concerns about registered charities seriously. Find out what we can and can't investigate.See details»

Sanfilippo (@sanfilippochildrensfoundation) • …

For more www.sanfilippo.org.au" Sanfilippo (@sanfilippochildrensfoundation) • Instagram photos and videos 3,907 Followers, 941 Following, 1,886 Posts - Sanfilippo (@sanfilippochildrensfoundation) on Instagram: "Children's …See details»

Mission Statement - teamsanfilippo.org

Team Sanfilippo has developed a strategic plan to achieve our mission. Due to recent scientific advancements in the areas of enzyme replacement, gene therapy, and small molecules which has led to the initiation of clinical …See details»

Sanfilippo Children’s Foundation - orangesocks.org

Orange Socks is an initiative of RISE, Inc.,a 501(c)(3) organization. Facebook; RSS; Copyright Orange Socks 2021See details»

Sanfilippo Children's Foundation - Profiles & Contacts - Crunchbase

SCF is a not for profit driving clinical research, enabling access to treatment and improving life quality for Sanfilippo children. Founded Sep 2013 Private Freshwater , Queensland , Australia …See details»

First Ever Global Consensus Clinical Care Guidelines for Sanfilippo ...

Nov 23, 2022 The first-ever global consensus clinical care guidelines (guidelines) for Sanfilippo Syndrome have been published. RVA Partner Sanfilippo Children’s Foundation (Australia) has …See details»

Important Update on the Sanfilippo Children's Foundation

After careful consideration, I’m pleased to announce that the Sanfilippo Children’s Foundation’s mission will be carried forward by the Childhood Dementia Initiative, the organisation …See details»

Sanfilippo Children's Foundation - Eastern Suburbs Mums

Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most patients never reach adulthood. But there is hope. Researchers around …See details»

Now available: A Global Roadmap For Sanfilippo Syndrome …

Feb 8, 2022 Sanfilippo Children’s Foundation (Australia), Cure Sanfilippo Foundation (USA), and other Sanfilippo patient-advocacy organizations around the world are proud to launch the …See details»

Sanfilippo Initiative – Sanfilippo Initiative

Sanfilippo Initiative is an answer to needs of parents with children affected by Sanfilippo Syndrom (MPS III). We focus on supporting research and all initiatives that will lead to finding a cure for …See details»

Sanfilippo Families Australia & New Zealand - Facebook

This is a private group for Sanfilippo families in Australia and New Zealand. Following the closure of our beloved Sanfilippo Children's Foundation in January 2025, it was critically important to …See details»

Sanfilippo Children's Foundation - LinkedIn

Registration is here: https://lnkd.in/gFfv4g4a Please note: Sanfilippo Children’s Foundation has ceased to operate as a separate entity. Sanfilippo Children’s Foundation’s mission will be …See details»

Sanfilippo Children's Foundation - Find Local Businesses

Sanfilippo Children's Foundation is a not-for-profit research group. Go to: www.sanfilippo.org.au No family should ever have to face a devastating diagnosis. Sanfilippo Syndrome is a rare, …See details»

Sanfilippo Children's Foundation, Freshwater, NSW

Sanfilippo Children's Foundation, Freshwater, NSW . Website. Route. Sanfilippo Children's Foundation . Po Box 475, Freshwater, NSW 2096. 1800 664 878 . www.sanfilippo.org.au. …See details»

Team Sanfillipo — Parents united to find a cure or treatments

Cure Sanfilippo, Gene therapy, Get help for Sanfilippo, MPS, MPS III, Rare diseases, lysosomal disease, and Fundraising Team Sanfillipo — Parents united to find a cure or treatments …See details»

linkstock.net © 2022. All rights reserved