STOP SANFILIPPO
Stop Sanfilippo is an organization dedicated to the promotion of research against Sanfilippo Syndrome and the care of affected children.
STOP SANFILIPPO
Industry:
Association Health Care
Founded:
2012-01-01
Status:
Active
Technology used in webpage:
IPhone / Mobile Compatible Viewport Meta Euro SPF Apple Mobile Web Clips Icon Google Font API WordPress SSL By Default Font Awesome ReCAPTCHA
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Current Employees Featured
Investments List
| Date | Company | Article | Money raised |
|---|---|---|---|
| 2017-10-16 | Abeona Therapeutics | Stop Sanfilippo investment in Grant - Abeona Therapeutics | 13.85 M USD |
More informations about "Stop Sanfilippo"
We Are Working To Cure Sanfilippo Syndrome. - What We Do – …
Nov 20, 2024 Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization. All net funding goes to the urgent mission to advance treatment options to treat children with …See details»
Fundación Stop Sanfilippo
Por ahora no existe cura, ni tratamiento. Aún así es primordial un diagnóstico temprano para poder paliar los efectos de la misma. No podemos evitar la enfermedad, pero si podemos …See details»
What is Sanfilippo Syndrome - Cure Sanfilippo …
Jun 15, 2023 The true number will only be known when Sanfilippo is included in newborn screening. Sanfilippo is classified as a rare disease because it affects fewer than 200,000 in the U.S., a definition that was established in the Orphan …See details»
Team Sanfillipo — Parents united to find a cure or treatments
Our volunteer Board of Directors are mostly parents of children with Sanfilippo Syndrome who organized with one goal in mind, “to provide a better life and ultimately a cure for Sanfilippo …See details»
ISSA - Working together to solve Sanfilippo syndrome
Together we are a united voice determined to solve Sanfilippo for every family today, and every family tomorrow. Progress through unity. ISSA brings together the global Sanfilippo community to collaborate on shared priorities, accelerate …See details»
Abby Grace Foundation - Helping Find a Cure for …
Oct 25, 2016 The Abby Grace Foundation remains HOPEFUL for a CURE for Sanfilippo Syndrome. There is currently no cure or even a treatment for this always fatal disease. There is exciting research on the horizon for children …See details»
Stop Sanfilippo - Crunchbase Investor Profile & Investments
Stop Sanfilippo is an organization dedicated to the promotion of research against Sanfilippo Syndrome and the care of affected children.See details»
Cure Sanfilippo Foundation - Midlands Gives
Cure Sanfilippo funds the most promising research to bring about more clinical trial options...a life line for these kids, before it is too late. In 9+ years, thanks to incredible support and …See details»
Foundation is proud founding member of international Sanfilippo ...
Jan 30, 2024 Today, we launch the International Sanfilippo Syndrome Alliance (ISSA), a global collaboration committed to the rapid delivery of benefits and solutions for individuals with …See details»
Cure Sanfilippo Foundation - Facebook
Cure Sanfilippo Foundation. 42,253 likes · 656 talking about this. Donate to save children: https://www.CureSanfilippoFoundation.orgSee details»
Home | The Sanfilippo Children's Research Foundation
The goal of our foundation is to fund medical research into Sanfilippo syndrome and it's related neurogenetic diseases. Our Sanfilippo community has gown over the years as more children …See details»
Stopsanfilippo - YouTube
Fundación dedicada al fomento de la investigación para el Síndrome de SanfilippoSee details»
Stop Sanfilippo - Contacts, Employees, Board Members
Stop Sanfilippo is an organization dedicated to the promotion of research against Sanfilippo Syndrome and the care of affected children.See details»
Now available: A Global Roadmap For Sanfilippo Syndrome …
Feb 8, 2022 Now, with the Roadmap in hand, Sanfilippo patient organizations from around the world can more effectively come together to focus attention on their shared priorities. Cure …See details»
TREATMENT - Sanfilippo Initiative
There are several approaches being investigated for the treatment of Sanfilippo. Whilst the cause of the disease is fairly well understood (the presence of mutated genes prevents the body from …See details»
How close are we to therapies for Sanfilippo disease? - PMC
Sanfilippo disease is one of mucopolysaccharidoses (MPS), a group of lysosomal storage diseases characterized by accumulation of partially degraded glycosaminoglycans (GAGs). It …See details»
Supporting & Uniting Sanfilippo Families
When parents get the diagnosis of Sanfilippo Syndrome, they immediately start searching for answers. For hope. Cure Sanfilippo Foundation is often one of their first touch points in the …See details»
Petition · Stop the Misuse of the RICO Statute - Change.org
2 days ago We must put a stop to the misuse and overuse of the RICO statute here in the United States of America. Who is Impacted?The Racketeering Influenced and Corrupt Organizations …See details»
Key Points of Sanfilippo Advocacy Group Response to FDA Guidance
Jun 4, 2020 Reagan’s Hope, A Cure for Sanfilippo. Aidan’s Antics, Inc. JLK Research Foundation. Additional International Organizations: Sign-on Support: Sanfilippo Children’s …See details»