SYNGAP RESEARCH FUND
Volunteer non-profit that seeks to advance research for patients affected by SynGAP1 variations.
SYNGAP RESEARCH FUND
Industry:
Health Care Neuroscience Non Profit Therapeutics
Founded:
2018-01-01
Status:
Active
Contact:
650-441-4191
Email Addresses:
[email protected]
Investments List
| Date | Company | Article | Money raised |
|---|---|---|---|
| 2023-04-05 | Axonis Therapeutics, Inc. | SYNGAP RESEARCH FUND investment in Grant - Axonis Therapeutics, Inc. | 130 K USD |
More informations about "SYNGAP RESEARCH FUND"
SynGAP Research Fund – Impact on the Road to Cure SYNGAP1
Jan 12, 2025 Every year since its 2018 incorporation, SynGAP Research Fund (SRF) dba Cure SYNGAP1 has helped advance our mission “to improve the quality of life of SYNGAP1 …See details»
SynGAP Research Fund (SRF) dba Cure SYNGAP1 Announces the …
See complete Impact Report here. See official press release here.. Mill Valley, CA – February 11, 2025 – The SynGAP Research Fund 501(c)(3) dba Cure SYNGAP1 proudly announces the …See details»
Roadmap to advance therapeutics for SYNGAP1
We thank leaders of International Syngap PAGs for sharing their data summaries, information, and suggestions: Verena Schmeder and Marcos Mengual Hinojosa of SYNGAP Elternhilfe e.V., Krefeld, Germany; Katrien A. Deckers of Stitching …See details»
Roadmap to advance therapeutics for SYNGAP1 -related disorder: …
Jan 12, 2025 Plain language summary Five years of progress: from zero to many therapeutic treatments in development for SYNGAP1-Related Disorder, a Patient Organization …See details»
Syngap Research Fund - Wikitia
The Syngap Research Fund is a rare disease non-profit organization based in the United States. Its mission is to improve the quality of life of SYNGAP1-related intellectual disability patients …See details»
Overcome SYNGAP1, Wandoan Campdraft for a Cure & SynGAP …
Aug 3, 2022 Campdraft, an Australian SynGAP family effort, generously co-funded this grant in partnership with SynGAP Research Fund Australia. Prof. Bowie says, “We are extremely …See details»
Roadmap to advance therapeutics for SYNGAP1-related disorder: …
SYNGAP1-Related Disorder, a Patient Organization Perspective from SynGAP Research Fund. SYNGAP1-related disorder (SRD) is a rare condition that is caused by accidental changes in …See details»
Staying Focused & Taking Action: Advocating for the SYNGAP1 …
Virginie McNamar is Chief Operating Officer and President of SynGAP Research Fund dba Cure SYNGAP1 and shares the organization's concerns about the current state of federal funding …See details»
Overcome SYNGAP1, Wandoan Campdraft for a Cure …
Aug 3, 2022 ABOUT SYNGAP RESEARCH FUND. SRF, incorporated in the US in 2018, is a 501(c)(3) public charity whose mission is to improve the quality of life of SYNGAP1 patients through the research and development of treatments, …See details»
Syngap Research Fund Incorporated - GuideStar Profile
Legal name of organization: Syngap Research Fund, Incorporated. EIN for payable organization: 83-1200789 Close. EIN. 83-1200789. NTEE code info. Birth Defects (G20) IRS filing …See details»
SynGAP Research Fund dba cure SYNGAP1 (SRF) a | EurekAlert!
Feb 11, 2025 The SynGAP Research Fund 501(c)(3) dba Cure SYNGAP1 proudly announces the release of its inaugural Impact Report, a transparent and celebratory reporting of tangible …See details»
SynGAP Research Fund - scientifyRESEARCH
SynGAP Research Fund is a charitable organization dedicated to improving the quality of life of people affected by the rare disease SynGAP1 syndrome. The fund supports the research and …See details»
Rare Leader: Mike Graglia, Managing Director, Syngap Research …
Dec 17, 2020 The Basics. Name: Mike Graglia. Title: Founder and Managing Director. Organization: Syngap Research Fund Social Media Links: Disease focus: SynGAP1 syndrome …See details»
Syngap Research Fund - YAI: Seeing Beyond Disability
SynGap Research Fund is a parent-led 501(c)(3) public charity incorporated in 2018. The mission is to improve the quality of life of SYNGAP1 patients through the research and development of …See details»
SynGAP Research Fund (SRF) Announces DBA Cure SYNGAP1: A …
Nov 4, 2024 In a new milestone, SynGAP Research Fund (SRF) is proud to announce an exciting update that marks a new chapter in our ongoing efforts to find a cure for SYNGAP1 …See details»
SynGAP Research Fund, Wandoan Campdraft and S | EurekAlert!
Oct 4, 2022 PALO ALTO, CA – SynGAP Research Fund (SRF), a 501(c)(3) public charity whose mission is to improve the quality of life for SYNGAP1 patients through the research and …See details»
Rating for Syngap Research Fund Incorporated - Charity Navigator
Syngap Research Fund Incorporated has earned a 2/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in SAN DIEGO, CA. ... Simply enter the …See details»
SYNGAP1 CENSUS 2025 Update: +51 in Q1 2025; Total = 1,581 – …
3 days ago Every quarter, SynGAP Research Fund (SRF) dba Cure SYNGAP1 and our partner organizations in the Syngap Global Network (SGN) tally up the newly diagnosed patients in …See details»
Cuts to science research funding cut American lives short − federal ...
6 days ago Funding cuts have led to the shuttering or heavy reduction of training programs for future scientists. Graduate students and postdoctoral trainees are the lifeblood of biomedical …See details»
Mission & Values – Syngap Research Fund - curesyngap1.org
SRF is a 501(c)(3) public charity incorporated in 2018. The mission is to improve the quality of life of SYNGAP1 patients through the research and development of treatments, therapies and …See details»