VHL ALLIANCE
VHL Alliance provides awareness, diagnosis, and treatment and helps in improving the quality of life for the people affected by VHL.
VHL ALLIANCE
Industry:
Health Care Hospital Non Profit
Founded:
1993-01-01
Address:
Boston, Massachusetts, United States
Country:
United States
Website Url:
http://www.vhl.org
Total Employee:
1+
Status:
Active
Contact:
800.767.4845
Email Addresses:
[email protected]
Technology used in webpage:
Euro ReCAPTCHA Microsoft IIS 10 Sectigo SSL Sectigo Domain SSL ASP.NET 4.0 Microsoft Azure ReCAPTCHA V3 Unified Layer
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Official Site Inspections
http://www.vhl.org Semrush global rank: 1.15 M Semrush visits lastest month: 23.78 K
- Host name: 172.67.145.133
- IP address: 172.67.145.133
- Location: United States
- Latitude: 37.751
- Longitude: -97.822
- Timezone: America/Chicago
More informations about "VHL Alliance"
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Our mission is improving quality of life and health outcomes for VHL (Von Hippel-Lindau) patients, families, and caregivers.See details»
About The VHL Alliance | Founded in 1993
What is the VHL Alliance? The VHL Alliance is a 501c3 non-profit focused on supporting patients, families, and caregivers affected by von Hippel Lindau disease (VHL). Founded in 1993, the VHL Alliance is the preeminent resource …See details»
VHL Alliance - National Organization for Rare Disorders
The VHL Alliance is a voluntary, non-profit organization dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease …See details»
Canadian VHL Alliance – To Fund Von Hippel-Lindau …
The Canadian VHL Alliance (CVHLA) is a non-profit focused on supporting patients, families, and caregivers affected by von Hippel Lindau disease (VHL). The CVHLA is a great resource for …See details»
More Homepage | VHL Canada
Von Hippel-Lindau Disease (VHL) is an inherited tumor predisposition syndrome caused by a flaw in one gene– the VHL gene. VHL involves the growth of both benign and malignant tumors in …See details»
The History Of The VHL Alliance
As such, the organization made its mission to connect and educate VHL patients and their families while providing information to healthcare providers to advance VHL diagnosis, …See details»
VHL Alliance - National Eye Institute
Oct 23, 2019 · The VHL Alliance (VHLA) is a 501c3 non-profit organization founded in 1993 by three families with VHL to share experiences, learn from one another, support one another, …See details»
Von Hippel-Lindau Disease - Symptoms, …
Oct 25, 2023 · Information on current clinical trials for treating VHL is posted online at vhl.org/trials and www.clinicaltrials.gov. All studies receiving U.S. government funding, and some supported by private industry, are posted on …See details»
Von Hippel-Lindau Syndrome - GeneReviews®
May 17, 2000 · Von Hippel-Lindau syndrome (VHL) is characterized by hemangioblastomas of the brain, spinal cord, and retina; renal cysts and clear cell renal cell carcinoma; pheochromocytoma and paraganglioma; pancreatic …See details»
Education & Meetings | Where To Learn More
The VHL Alliance provides opportunities for healthcare professionals to learn the most up to date information about basic, translational, and clinical VHL research.See details»
VHL Canada - Find Peer Support and Resources …
Discover a community for those living with VHL syndrome in Canada. Explore blogs, activities, and resources for coping with this condition. Join now for support and information.See details»
VHL Alliance - National Organization for Rare Disorders
The VHL Alliance is a voluntary, non-profit organization dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease …See details»
UCLA’s multidisciplinary program transforms the outlook
3 days ago · VHL, which affects about 1 in 36,000 people, is caused by a mutation in the VHL gene, which normally regulates cell growth. When the normal VHL gene is lost, it can cause …See details»
Guidelines for surveillance of patients with von …
Jun 19, 2023 · Here, we present the methodology, evidence grading, and guidelines for surveillance for oncologists, internists, pediatricians, or general practitioners who treat patients with VHL disease. Organ-specific guidelines …See details»
Consensus Guidelines for Ocular Surveillance of von …
Working groups with expertise in organ-specific features of VHL disease were tasked with development of evidence-based guidelines for each organ system. The ophthalmology …See details»
Von Hippel-Lindau Clinic - Overview - Mayo Clinic
Jun 12, 2024 · Individuals with suspected or confirmed Von Hippel-Lindau (VHL) disease are seen in Mayo's VHL Clinic. The clinic's team of experts includes experts in medical genetics, …See details»
Our Values - VHL Alliance
We are a convening organization that continuously leads knowledge building, information gathering, and innovation to help patients, families, and caregivers to live well with VHL and …See details»
Rating for Vhl Alliance Inc. - Charity Navigator
Vhl Alliance Inc. has earned a 4/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in Boston, MA.See details»
Von Hippel-Lindau Disease (VHL) - BrainFacts
Von Hippel-Lindau disease (VHL) is a rare, genetic multi-system disorder characterized by the abnormal growth of tumors in certain parts of the body. The tumors of the central nervous …See details»
What You Need to Know About VHL
The VHL Alliance (VHLA) is a 501c3 non-profit organization founded in 1993 by three families with VHL to share experiences, learn from one another, support one another, and help the doctors …See details»